Stroke
On November 7, 2016, I added stroke to my long and growing list of medical issues. It began with a racing heart and halting speech. I had...
Drs. in Baltimore familiar with EDS
Written by: Amanda Henderson, June 23, 2016 On May 25, 2016, Dr. Clair Francomano confirmed POTS symptoms and Mast Cell issues without...
Share Your Zebra Magic
Written by: Amanda Henderson, March 24, 2016 Oakland Christian Church (DOC) of Oakland, Iowa hosted a benefit dinner and auction on March...
I got in! EDS clinic, here I come...
After emailing a 31-page pre-appointment questionnaire (download it here, for your own use), and waiting 5 months to hear back, I've...
My Story Shared on Rare Disease Legislative Advocates
Hello, and welcome to my Rare World! I’m your guide on this journey, Amanda Henderson, a 39 year old disabled Graphic Designer. I live in...
Hope, Peace and Joy for the holidays!
The holiday seasons are often busy for everyone. We try our best to fit in the Christmas shopping, baking, family gathering, beside all...
Ehlers-Danlos, Revolution!
Finally, more desperate for a breakthrough than I'd ever been, my stepmom helped clear the way for a new path. She met a rheumatologist...
2011 Brings confusion, disappointment, emotional turmoil.
My first appointment since the gait issues began was in February, 2011 at a pain clinic in Omaha, NE. It consisted of sorting through the...
The search continues in 2010...
Throughout 2010, I continued to try to recover from Fibromyalgia, and make a life for myself. The chiropractic care seemed to help, and...
2005-2009 Begins the long process of discovery.
In August of 2005, not only did I get married, but I was finding I could no longer ignore my growing list of physical demands. I also...
