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Online Resources
Rare Disease Websites
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Rare Disease Day, U.S.
 Mast Cell AwareMast Cell Issues |  The Ehlers-Danlos SocietyA great resource for EDS info. |  EDS Awareness |
|---|---|---|
 Rare ConnectRare Connect- Connecting Rare Patients A partnership of Eurordis and Nord |  NIHBranches of the NIH ORDR- Office of Rare Diseases GARD- Genetic and Rare Diseases |  Dysautonomia InternationalDysautonomia goes hand-in-hand with EDS. Check your symptoms- find a doctor |
 NORDNord- Rare Disease Registry |  EurordisEurordis- European resources |  Global Genes ProjectGlobal Genes Project- helpful knowledge about genetic diseases |
 EDSUKlogoEDS Support UK- Info from the UK |  InspireInspire- Online Support Groups for many different maladies. Sign Up for insights from patients. |  The Coalition Against Pediatric PainTCAPP creates and shares webinars and information on pain and possible causes. |
 The Mastocytosis SocietyA glimpse into Mast Cell Diseases |  MastSocCAMastocytosis Society Canada |  DINETDysautonomia Information Network |
The internet contains many resources for connecting people with medical answers. These organizations prove to be on the forefront of new and improving information.
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Links: A first glimpse at rare disease.
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