Doctors who specialize in EDS

Finding doctors who are knowledgeable in EDS and are willing to find diagnoses and treatments based on the complex and unique symptomology of EDS can be daunting- they're about as common as finding a pot of gold at the end of a rainbow. Many patients even find that they can only get so far down the path of recovery with a certain doctor to find they've reached the end of their knowledge, and they're back to square one in the search. It often takes many months or years to get in to see a doctor who specializes in EDS, but it is worth the effort. Based on years of research, appointments, and experience, here is a list of doctors who top the lists of EDS specialists in the US. Also, here is a list of doctors in the US that specialize in EDS on the Ehlers-Danlos Society webpage, as well. However, it does not include every doctor that is EDS aware- it depends on patients that visit the site to keep the list updated.