Medical Advances
In EDS and rare disease, things evolve and change regularly. It's all we can do to keep up with medical advances, and find what may improve our symptoms. Keep an eye on these doctors and their growing insights.
Dr. Clair Francomano, MD
Riley Medical & Molecular Genetics
Indianapolis, IN
Ehlers-Danlos Syndrome
Dr. Fraser Henderson, MD
The Metropolitan Neurosurgery Group
Silver Springs, Maryland
Neurosurgical Problems with EDS
Dr. Alan Pocinki, MD, FACP
Internal Medicine Specialist
George Washington University Hosp.
Washington, D.C.
Fatigue in EDS/HSD
Dr. Robert Bohinski, MD, PhD
Neurosurgeon
Mayfield Chiari Center, University of Cincinatti
Chiari Diagnosis & Treatment
Dr. Petra Klinge, MD, PhD, Neurosurgeon
Neurosurgery Foundation - Lifespan Physician Group, Providence, RI
Tethered Cord Syndrome in EDS
Jan Dommerholt, PT, DPT, MPS
Bethesda Physiocare
Bethesda, Maryland
Physical Therapy & Exercise for EDS
Dr. Bradley Tinkle, MD
Advocate Medical Group Genetics
(temporarily not a provider)
Park Ridge, IL
Neck and Back Pain in JHS/EDS
Dr. Anne Maitland
Comprehensive Allergy & Asthma Treatment
Tarrytown, NY
Mast Cell Activation Disorder
Dr. D. Eli Penn
Atrium Navicent Gastroenterology Center
Macon, GA (temporarily not a provider)
hEDS and the GI tract
Dr. Karen Herbst
A Leading Expert on Lipedema
EDS and Lipedema
Linda Anne Kahn
A Leading Expert on CTD and the Vagus Nerve
EDS, MCAS, POTS, Dercum's and Lipedema
Dr. Steven Smith
EDS, POTS, and
Pelvic Congestion Syndromes
(retired, publishing research)
Dr. Alexis Cutchins
A Leading Expert on Venous Insufficiency in
CTD and POTS
Dr. E. Brooke Spencer
at MIPS in Highlands Ranch, CO
May Thurner Syndrome, Pelvic Congestion
The Ehlers Danlos Society has several learning videos on You Tube about EDS and its related conditions. They are worth taking the time to watch and learn from.