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Medical Advances

New Ideas In Medicine:

In EDS and rare disease, things evolve and change regularly. It's all we can do to keep up with medical advances, and find what may improve our symptoms. Keep an eye on these doctors and their growing insights. 

Dr. Clair Francomano, MD

Riley Medical & Molecular Genetics

Indianapolis, IN

Ehlers-Danlos Syndrome

Dr. Fraser Henderson, MD

The Metropolitan Neurosurgery Group

Silver Springs, Maryland

Neurosurgical Problems with EDS

Dr. Alan Pocinki, MD, FACP

Internal Medicine Specialist

George Washington University Hosp.

Washington, D.C.

Fatigue in EDS/HSD

Dr. Robert Bohinski, MD, PhD

Neurosurgeon

Mayfield Chiari Center, University of Cincinatti

Chiari Diagnosis & Treatment

Dr. Petra Klinge, MD, PhD, Neurosurgeon

Neurosurgery Foundation - Lifespan Physician Group, Providence, RI

Tethered Cord Syndrome in EDS

Jan Dommerholt, PT, DPT, MPS

Bethesda Physiocare

Bethesda, Maryland

Physical Therapy & Exercise for EDS

Dr. Bradley Tinkle, MD

Advocate Medical Group Genetics

Park Ridge, IL

Neck and Back Pain in JHS/EDS

Dr. Anne Maitland

Comprehensive Allergy & Asthma Treatment

Tarrytown, NY

Mast Cell Activation Disorder

Dr. D. Eli Penn

Atrium Navicent Gastroenterology Center

Macon, GA (temporarily not a provider)

hEDS and the GI tract

The Ehlers Danlos Society has several learning videos on You Tube about EDS and its related conditions. They are worth taking the time to watch and learn from. 

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