Pandemic from a Chronic Viewpoint
Pandemic from a Chronic Viewpoint
Glimpses of Hope
Ehlers-Danlos Syndrome and its complex comorbidities- Hope and healing can help to carry us through seasons of discovery and outcomes.
Moving Violations
Written by: Amanda Henderson, August 1, 2018 A moving violation is described as a traffic violation in a moving vehicle. Therefore, if...
Where in the world is Carmen SanDiego?
Written by: Amanda Henderson, January 24, 2018 Do you remember watching this show in the 90's with baited breath, making it through...
Under-diagnosed, mismanaged diseases
Written by: Amanda Henderson, January 12, 2018 "Five years ago, TED Fellow Jen Brea became progressively ill with myalgic...
What If...
Written by: Amanda Henderson, December 27, 2017 The New Year is quickly approaching. As I reflect on 2017 and it's victories and...
Chronic Illness- Changing Lives and the Relationships Around Them
Written by: Amanda Henderson, August 27, 2017 Lawrence and I just celebrated our 12th Anniversary this past Sunday. I was flipping...
Rare Disease Day 2017
Written by: Amanda Henderson, February 28, 2017 As I read others' stories about the daily struggles they manage, I reflect on the crucial...
Advocate for Rare Disease Day
Written by: Amanda Henderson, February 27, 2017 As rare disease day approaches (Feb. 28), I am overwhelmed and consumed with the topic...
Happy Holidays, to the me I miss.
Written by: Amanda Henderson, December 3, 2016 As I snuggle up and become more comfortable with the latest version of me, stroke survivor...
