Life with EDS and Dystonia: Understanding Dystonic Storms with Aphasic Events
Written by: Amanda Henderson 1-28-26 Note: I'm not a medical professional- this blog is intended to provide experience and information in hopes of helping others. It is not medical advice. Living with dystonia presents daily challenges that many people may not fully understand. This neurological movement disorder causes involuntary muscle contractions, leading to twisting and repetitive movements or abnormal postures. It can be caused by genetic or neurological factors, brain
Navigating the Complexities of Ehlers-Danlos Syndrome and the Added Fear of Dystonic Storms (or any new and terrifying symptom)
Written by: Amanda Henderson 1-9-26 Note: I'm not a medical professional- this blog is intended to provide experience and information in hopes of helping others. It is not medical advice. Living with multiple chronic conditions can feel like walking a tightrope without a safety net. My journey with Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Dysautonomia (also known as the EDS trifecta) has taken me through a maze of symptoms and challenges. Along
